Celebrating 25 Years of Locked-In Syndrome (Tribute to a Wonderful Life)

07.01.2020

Celebrating 25 Years of Locked-In Syndrome

(Tribute to a Wonderful Life)

(Click here for audio version)

January 10th, 2020, is the 25th anniversary of the stroke. An average cerebral infarction takes about six minutes. Mine took over twenty hours. In all this time, the doctors could not figure out what was going on with me. They ruled stroke out because the thinking at the time was that; only people over forty years get brain infarcts. I was only twenty years old at the time. 

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The Locked-In Traveler: Pool Pleasure

01.01.2020

The Locked-In Traveler

(Kati’s Wheelchair Traveling Journals)

Pool Pleasure

(Click here for audio version)

Going to pool is my favorite therapy because usually, my body feels heavy but, in the water, I feel weightless.

The swimming pool at the therapy center does not have a ramp, but a chair with a small crane. By the pool, the therapist first puts the floating device around my waist. Then I am transferred from my wheelchair to the pool chair, and then I am lowered into the pool.

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The Locked-In Traveler: The great language barrier

07.11.2019

The Locked-In Traveler

(Kati’s Wheelchair Traveling Journals)

The great language barrier

(Click here for audio version)

Locked-In syndrome is also referred to as the Living corpse. No wonder for in the worst-case scenarios the patients cannot even move their eyes. I was completely paralyzed after the stroke. The only things I could move were my eyelids and my eyes. The only way I could communicate was by blinking my eyes. Once for; “yes” twice for; “no.” The letter board (air alphabet) was a blessing, with that system I could communicate again.

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The Locked-In Traveler: Taxi

22.10.2019

The Locked-In Traveler

(Kati’s Wheelchair Traveling Journals)

Taxi

(Click here for audio blog)

Nowadays, most developed countries have handicap taxi. Nevertheless, only in some (highly) touristic cities, you find them around the corner. In some cities like London, most cabs are wheelchair accessible. In others, you would have to order such a vehicle, and it might take a while before they arrive. There are places where you even must order an invalid taxi in advance.

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The Locked-In Traveler: Long Flights

18.09.2019

The Locked-In Traveler

(Kati’s Wheelchair Traveling Journals)

Long Flights

(Click here for audio version)

Sitting all day long is not as easy as one might think. Especially for someone that can only sit in only one position. My inability to move makes me such a person. No matter where I sit being it; the wheelchair, on the bed, a standard chair, or airplane seat, I am always in the same position.

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