What do you know about LOCKED-IN SYNDROME?
LIS for short is a condition where the patient is fully aware of everything, but cannot make their muscles move. They are completely paralyzed, and they cannot even communicate (speak).
Imagine yourself on the moon, an echo of silence surrounds you as the cold bitterly embraces you, everything begins to ache, you become stiff from the cold and can no longer move. You are trapped under a pitch – black sky, you try to scream and nothing comes out, any sound at all, no one is there to understand you or your pain. Trapped! How will YOU handle this situation?
90% of those with this condition die within the first four months. This story is about 1 of those that belongs to the 10%.
“What do you know about Locked-in-Syndrome” the Managing Editor asked. “Excuse me, what did you say?”
He had a yellow note pad in his hand. “The Käpylä Physical Rehabilitation Center called and offered an interesting sounding story. A young photo model has fallen ill with some awful disease, can’t talk or move anymore. We could get a touching story out of this”.
The ingredients for a story were good: a young beautiful woman, unknown illness, tragic fate. We decided to do a story, although Suomen Kuvalehti does not go after gossip. It, however, felt like a serious, human interest story.
“Her courage is beyond anyone I have ever met and her outstanding achievement is that she is alive and despite her daily struggle lives with laughter, and an incredible sense of humor, humanity and compassion.”
“A Finnish magazine recommended a blog from a Finnish model that became paralyzed after having a stroke. I checked it out. And it got to me. The idea of a woman while being in the condition and that she is still so strong and positive inspired me. I became interested in her story; I read her book, In the blink of an eye and that I started following her blog.”
“I feel that Kati’s story can be a source of inspiration to a lot of people all over the world. It has the power to encourage people to live their life the best way possible no matter what their situation may be. I suggested and volunteered myself to do the translation of Kati’s blog in Russian.”
“My name is Svetlana Leinonen. I am originally from Russia and I have been living in Finland since 2005. I am married and have a six-year-old son. I like the Finnish language, especially translating it. I’m not a professional (at least not yet), maybe in the future.”
A young and upcoming Finnish model who was left paralyzed after a stroke shares her life experiences in her blog. Kati is a true (SISU) inspirational model who shows that through pure determination, faith and perseverance anyone can make the best out of their lives and live it at its fullest.